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2009/04/14

Zi 自閉症--Kyle Neil

Zi 自閉症--Kyle Neil 見證
 
Kyle Neil was born on April 19, 1998, a healthy beautiful baby boy. He progressed normally, at 12 months he was walking, at 15 months he had about 10 words, and at 18 months he was still progressing. We were counting our blessings.
 
We kept Kyle's vaccinations up to date. With each shot he would get extremely sick, running a fever and develop a 哮吼聲croup coughing. Since our doctor had told this might happen, we thought that the reaction was just part of the process. Kyle started a slow descent into his own little world. His behavior was on a steady decline, with bizarre behaviors and decreasing speech
 
Kyle was sinking into AUTISM, a developmental disability we knew little about. He now had our full attention. 
 
We noticed Kyle started becoming extremely 挑剔的finicky when it came to food. He would only eat chicken nuggets, pizza, and drink milk. Kyle was drinking about 8 cups of milk a day, along with watching 6 hours of movies a day. We thought, “milk, does a body good”. That’s the slogan we grew up with, how could milk be bad for him.
 
Kyle frequently had bright red checks. His stool was always runny (diarrhea). He had problems sleeping every other night. He would no longer make eye contact. You could yell his name and he would not look at you. He started to walk on his tiptoes. He would walk back and forth behind our plaid couch focusing on the pattern with his eyes. He would drop puzzles pieces in front of his eyes and run his fingers and toys slowly in front of his eyes.
 
This is called self-stimmingself-stimulation. He would line his toys up. The little boy we could take anywhere and liked to go all the time, started to scream with any transition. We couldn't go anywhere without an outburst. The only way to control his outburst was a sipper cup, full of milk. We had to have the milk close at hand. When I would go to the park with my girlfriend and her kids there where many times I would ask for some milk and joke, we need to give Kyle his drug. If only I knew what I was saying.
 
Kyle was diagnosed January 2001; he was 2 years 8 months old. We were in disbelief. We had his blood drawn right then and there, to check for the fragile X chromosome. The doctor told us Kyle’s test returned negative, but that doesn’t mean he is not Autistic.
 
That was enough for us to start our fight.
 
Through February and March we started private speech with an extraordinary woman, O.T. services through the school system, and our research. I started reading and came across Karyn Seroussi's book (Unraveling The Mystery Of Autism And PDD) and was 被迷住的intrigued and couldn't put it down. Miles (Karyn's son) and Kyle had many similarities. As I was reading I told my husband, if this helps Kyle 2% we are going to do it. We discovered Kyle actually had severe food allergies. This was evident by immediately removing milk from his diet; we noticed he started making eye contact with us.
 
After two weeks of being on the diet, Kyle accidentally drank his sister's milk. Before I could say a word he spit it out like a cat remembering bad food. Within three weeks of O.T. therapy I told the therapist “My son is back.” She looked at me with sympathy. We slowly started taking foods containing gluten (a wheat by product) away. We also eliminated soy and corn. When the corn was reintroduced Kyle immediately had diarrhea. We found Kyle had the same reaction to soy as well. We introduced supplements such as DMG, SuperNuThera, and Probiotic Primadophilus, and slowly noticed improvements in Kyle’s speech and language. We started the diet in full force April 2001.
 
This was no easy task taking away the foods Kyle had a craving/addiction for. There was a fairly dramatic withdrawal reaction; Kyle woke up in the middle of the night and acted heavily drugged. He was definitely in a world of his own. He started to drag his forehead on the carpet. I was in complete tears every night. It was hard to watch my baby go through this.
 
The initial die-off only lasted one long week. After a month Kyle was catching up. He was now more consistent with his eye contact. He started to point at things he wanted, if not ask for it by name. His speech was good but 硬背rote with some 模仿言語echolalia. He still had some autistic behaviors from time to time. There were many times we wanted to give up. We did get to a point where the behaviors became very minimal. We knew we had to do the GF/CF diet 100%.
 
One big issue for Kyle was transition. Before the diet Kyle would scream every time we left the house to go somewhere. We couldn’t take his picture without an outburst. Our friends couldn’t come to the house without Kyle screaming at them or at us. I thought to myself, “I can not have this child run our lives". So I started taking him to the mall a lot, exposing him to activities he didn’t like to do, and eliminated all TV. We got to the point where we could go into the mall without an outburst, but not any stores. Then certain stores were okay. Now he can go in any store. He asks to go somewhere or do something every day. His speech is no longer rote or echolalia.
 
After a few months on this strict diet we felt something else was missing. We cameacross a Glyconutrients supplement. There are case studies of Glyconutrients helpingAutistic/ADHD children. When we implemented this supplement we couldn't believe the positive effect it had on Kyle. We noticed immediate improvement in Kyle’s cognitive ability, his eye contact, his gross and fine motor skills, his imaginative play, and his social interaction. For example, we noticed Kyle alternating his feet on the stairs spontaneously. Which means he was using both sides of his brain. But the behaviors were still present. The reason was that his body was cleansing. The life of a new blood cell is every four months. And after four months on this supplement his behaviors completely subsided. This was clearly another die-off reaction.
 
Kyle loves to play Board Games, Animals in the Jungle, Dinosaurs, Trains, Dress-up, and "Little People". He rides a two-wheeler with training wheels. He draws beautiful pictures and much, much more. He swallows pills, knows what he can and can’t eat, and lets us put supplement powders in his food and water. We feel that Kyle is fully aware of what has happened to him. We think he might have some memories of his food intolerance and knows how much better he feels with his supplements. When you give Kyle his pills, he pops them in his mouth and in the same breath says, “thank you”. Kyle is definitely one special kid.
 
On December 10, 2001 we took Kyle back to the doctor that diagnosed him. When shewalked into the exam room Kyle said, “Hello doctor.” She acted as if he wasn’t the same child she diagnosed a year ago. Through the next two hours of tests, she looked at him in disbelief.
 
Kyle had recovered: he had shed all of the traits that labeled him Autistic. He is at agelevel in social, self-help, and motor skills. He was two months behind in language skills with an extraordinary vocabulary (5-7 year old).
 
We attribute Kyle’s success to KYLE, Glyconutrients, Karyn Seroussi's book, anddefinitely hard work. Kyle is in a regular preschool, plays with his school andneighborhood friends. He has scored average or above average on all evaluation testsand has no Autistic traits.



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